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	<title>Media law and ethics &#187; steve jobs</title>
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		<title>&#8216;Less than a rock star&#8217;s gold toilet seat’</title>
		<link>https://meejalaw.com/2012/09/19/less-than-a-rock-stars-gold-toilet-seat/</link>
		<comments>https://meejalaw.com/2012/09/19/less-than-a-rock-stars-gold-toilet-seat/#comments</comments>
		<pubDate>Wed, 19 Sep 2012 07:01:42 +0000</pubDate>
		<dc:creator>jtownend</dc:creator>
				<category><![CDATA[miscellaneous]]></category>
		<category><![CDATA[alexander masters]]></category>
		<category><![CDATA[dominic nutt]]></category>
		<category><![CDATA[NETs]]></category>
		<category><![CDATA[Neuroendocrine tumour]]></category>
		<category><![CDATA[Professor Magnus Essand]]></category>
		<category><![CDATA[steve jobs]]></category>
		<category><![CDATA[Uppsala University]]></category>

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		<description><![CDATA[This blog is normally kept for media &#38; law related content, so this post is a bit different from normal. Earlier this year Dominic Nutt, the husband of a colleague and friend of mine at the Centre for Law, Justice &#8230; <a href="/2012/09/19/less-than-a-rock-stars-gold-toilet-seat/">Continue reading <span class="meta-nav">&#8594;</span></a><img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=meejalaw.com&#038;blog=21851203&#038;post=2941&#038;subd=meejalaw&#038;ref=&#038;feed=1" width="1" height="1" />]]></description>
				<content:encoded><![CDATA[<p>This blog is normally kept for media &amp; law related content, so this post is a bit different from normal.</p>
<p>Earlier this year Dominic Nutt, the husband of a colleague and friend of mine at the Centre for Law, Justice and Journalism, was diagnosed with a Neuroendocrine tumour (NETs, also known as carcinoid tumours) which are very rare &#8211; the type of cancer that Steve Jobs had, which cannot be cured by drugs, chemotherapy or radiotherapy.</p>
<p>He has written about <a href="http://www.telegraph.co.uk/health/9544400/Would-I-takean-untested-cancer-treatment-myself-Hellyes.html" target="_blank">his experiences here</a>, with details of <a href="http://www.uu.se/en/support/oncolytic" target="_blank">a research project</a> at Uppsala University in Sweden, which is trying to raise £2 million to clinically trial a virus treatment against NETs. Professor Magnus Essand and his research team have genetically engineered a virus to target and kill neuroendocrine cancer cells but it cannot be used on humans until it has been clinically tested.</p>
<p>Alexander Masters (who wrote the book ‘Stuart: A Life Backwards’), whose friend Dido has neuroendocrine cancer, helped initiate the Oncolytic Virus Fund when he found out how much was needed to trial the treatment. <a href="http://www.telegraph.co.uk/health/healthnews/9508895/A-virus-that-kills-cancer-the-cure-thats-waiting-in-the-coldc.html" target="_blank">In a feature here</a>, he describes his reaction to the sums quoted by Professor Magnus Essand (£1 million for a phase II trial):</p>
<blockquote><p>“That Magnus&#8217;s virus could be held up by a minuscule £1 million dumbfounded me.</p>
<p>&#8216;That&#8217;s a banker&#8217;s bonus,&#8217; I said. &#8216;Less than a rock star&#8217;s gold toilet seat. It&#8217;s the best bargain going. If I found someone to give you this money, would you start the clinical trials?&#8217;</p>
<p>&#8216;Of course,&#8217; replied Magnus. &#8216;Shall I ask the Swedish Cancer Board how soon we can begin?&#8217;</p></blockquote>
<p align="center">***</p>
<p>On 30 September I will be running the <a href="http://www.bmw-berlin-marathon.com/en/" target="_blank">Berlin Marathon</a> &#8211; <a href="http://www.nytimes.com/2012/04/21/sports/the-marathons-accidental-route-to-26-miles-385-yards.html" target="_blank">26 miles 385 yards</a>, or 42.195 km. I&#8217;m trying I hadn’t originally planned to do it for charity – my incentive was the trip itself and I thought training would be a good break from the computer screen and deskbound PhD life. With a few painful training runs behind me all I can say that is seemed a good idea at the time &#8230;</p>
<p>I doubt any bankers wondering what to do with their bonuses are reading this blog. But if you have a couple of quid spare and might have sponsored me, had I asked, perhaps you could consider making a donation to the Oncolytic Virus Fund. As it’s not a UK charity I can’t set up a JustGiving page so please donate directly to the University research project <a href="http://www.uu.se/en/support/oncolytic" target="_blank">here</a>, via post or PayPal. You will need to use a <a href="http://www.xe.com/ucc/" target="_blank">Currency Converter</a> to work out the Swedish Krona.</p>
<ul>
<li><a href="http://www.uu.se/en/support/oncolytic" target="_blank">www.uu.se/en/support/oncolytic</a></li>
</ul>
<p>Many, many thanks for your support.</p>
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